GetReal!

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Episode 25 - X Discrimination

Today we’ll catch up with Trina who lost her beautiful boy, Austin, to Duchenne Muscular Dystrophy two years ago. It turns out that her journey with Duchenne Muscular Dystrophy isn’t over yet because, contrary to popular belief,  girls and women are also affected by this devastating and deadly disease. But the scientific and medical communities have ignored this fact for decades. Well, Trina has had enough! And she’s on a mission to put girls and women with this rare disease on the research calendar. We’ll discuss this and more with her today on GetReal! 

Girls and Duchenne Muscular Dystrophy

But Girls Don't Get Duchenne, or Do They?

Life as a woman with DMD

They rallied around ‘our boys’ as they pushed for a Duchenne cure. Where did that leave girls?

Helpful links for DMD patients and their families…

Parent Project Muscular Dystrophy (PPMD): daily living resources

Muscular Dystrophy Association: Advocacy

PPMD: Take Action!

World Duchenne Awareness Day

Jett Foundation